Blue Monday.

Every Sunday, along with millions of others around the world, I check the PostSecret website. I save every postcard on my laptop, and I usually post a few ones on my tumblr, too. And today this one made me think. So I thought I'd write. It's the back of a card, so if you don't know what I'm talking about it might be best to visit the PostSecret website first to see the other side of the card.

With every medication, there are side effects. And the strong the drug, the stronger the side effects (well, for some people, anyway). I've been on quite a few different drugs and had a number of unpleasant side effects, so much so that in the past I've contemplated coming off medication altogether.

I think I was about 17. I'd been on medication for a few years at that point. I remember being in CAMHS, anyway. I don't know what I was talking about, why I wanted to come off it in the first place, but I was depressed and saw the drugs as making what was a cognitive problem worse. Then I wanted to come off them again, last year. I remember Sylvia's reply, it went something like, "So you're depressed and frustrated and you want to come off the anti-depressants because you feel like that will help? In what world would coming off the anti-depressants make sense?" I was 19 and stressed and depressed and constantly terrified and didn't want to have to deal with these horrible problems in front of me. I was sick of the fact that no one around me was going through it, I was sick of the fact that my peers' biggest worries were essay deadlines and making it in to class when I was trying to unblock my head, figure out why I was making myself depressed and try not to top myself in the process.      

Today is 'Blue Monday'. I'd never heard of this before, but apparently it's the most depressing day of the year. So far today I have managed to wake up, showered, handed in two essays, made birthday presents/jewellery, and watched a lot of 24. This is considered a very successful day for me. 

So what I wanted to say, or rather, ask- was it worth it? Are the side effects worth it? Are the hours (and money) spent in therapy worth it? Is it worth losing what feels like a huge part of myself, my identity, to try and keep myself safe?  

Every single damn tear and word needs to be worth it, because we are living in a world that does not care, a world that will let us fall and ignore our screams for help. It needs to be worth it because we need to change this world, change it for the better, change it to make it worth trying to survive. 

The last few weeks have shown me more than ever that we are at a critical time in the fight for the rights of disabled people in the UK and Ireland, one of a thousand problems I could easily list. We need to mobilise students to fight for the rights of those who are deliberately silenced and deliberately ignored. We need to use all the tools at our disposal, whatever they might be, to make sure that this fight does not go unheard and unnoticed. I am a disabled woman student and I am being let down, every single day, by the voices in Stormont, Westminster; even in places as close as my students' union and university. Where the hell has the compassion gone? Where is the anger? No one is going to start the argument for us- we need to do it ourselves.

Monday.

It's currently exam season. The library is filled with people. There are empty Boojum bags all over the cafe. Coffee sales are at an all time high. Facebook is covered in worried/angsty/stopped-giving-a-fuck-just-let-them-end statuses. 

Usually I'd be freaking out along with everyone else. I've never taken exam stress well. Well, at least I don't think I have. I tend to perform well in exams, and even though right now I'd say that I don't think exams stress me out BECAUSE I perform better in them.. I remember having a conversation with my mum about this a few months ago and she stared back at me with disbelief- I'd clearly forgotten how ill I'd been as a result of the pressure last year, and that doesn't surprise me. Your mind blocks things out, at least mine does. It blocks out painful memories, and as cliched as it sounds, it's true. Because I came out of last year with a 2.1, I seemed to have forgotten how bad I was around exam time. This is the same thing that happened with my GCSEs and my A Levels. And of course, I promptly forgot how ill I was during those exams too, because I came out each time with good grades. 

Things were so bad last year I considered dropping out of university entirely. Then I told myself to wise up, because it wasn't like I had a part time job or anything I could do for a while.. I'd literally be going from university to nothing- which is what is definitely needed in some cases, but I didn't think I was ill enough to have the only thing I 'do' be therapy. I'm used to being busy all of the time. I just know I wouldn't have been able to do it- although saying that, I do think I should have maybe taken a few gap years before coming to university in the first place.

Because of the new medication and the short term medication I'm on at the minute, my memory is fucked. Short term memory, that is. So I wouldn't be able to revise (psychiatrist's words, not mine- I actually initially thought they helped me revise, just because they cleared my head). So then I decided to try to do essays instead of exams. And for once in their lives, my school were actually relatively good about it all (my school in the university- ever since I've arrived at university I've had to constantly jump through hoops in order to get what I need disability wise, in terms of provisions etc., it's been an absolute fucking joke) and it got sorted pretty quickly. Instead of three exams, I'm writing three essays. 

The first two are done, and I've just begun working on the third. I had roughly a week to do each of them, which factored in time for bad days etc., and I knew I'd be alright. And so far, I have been. This is the least stressed-out I've been around exam time, ever. Even though I can't remember specific details of exam times in the past, I know that much. I've so far stayed on schedule, and gotten the first two essays done within the first fortnight, leaving me a week for the third. So technically, everything should be grand. 

I'll give you another account of the last three weeks. Whilst everything has stayed on track (to a degree) in terms of my university work, my health is all over the place. I've lost weight, because I keep forgetting to eat- which then makes me scared I'll revert back into old unhealthy habits in regards to food, just because I've remembered what it's like to lose weight. I either sleep little or too much. When I started my newest medication, I couldn't even pour a cup of tea without spilling hot water everywhere, my coordination was so bad. Sometimes I've lay in bed for fourteen hours because I don't have the energy to pull myself up. I've ran back, literally and metaphorically, to ex-boyfriends, because whenever I get lonely and depressed I try to remember where I ever found any source of comfort or affection and try desperately to cling back at it. Each day I've spent in the library, I've had to take some form of tablet to help me concentrate enough to do work, and then worry about the stares I get when I lift out said tablet to take it. Then it makes me sleepy, so I have to have caffeine to make myself wake up. It's a vicious cycle- especially because amidst this, I've forgotten to eat a meal, so my energy levels aren't what they should be. I come home to an empty house (my house mate has caught the horrible virus thing that's going around and now that her exams are over it's understandable she'd rather be at home), turn on the heating, and sit in bed freezing for a few hours before I take more medication and send myself off to sleep. I keep looking down at my hands in disbelief, I just can't see them as my hands any more and I don't know why. And whilst trying to manage this, I'm also trying to do three essays, do what I can for NUSUSI, and battle with my university and students' union in regards to provisions for disabled students amongst other things.

It is exhausting. 

But it's half past midnight, and I'm not exhausted, even though I had to get up early today for an appointment, because I think I remembered to have breakfast but I don't think I managed lunch or dinner, and there comes a point where a lack of food gives you an odd manic energy that you can't quite explain. I've told my doctors about this, I'm doing all that I can university wise, and I was a little worried they would try to admit me this morning at my psychiatrist appointment, so the fact that I'm writing this is in itself a good thing- what an odd thing to be proud of on a Monday night. 

But it's Monday, and it's over and I should take my tablets soon so that I don't sleep for the entire day tomorrow. I wasn't admitted and I can't make a meeting I really wanted to go to tomorrow morning, but I suppose I can live with that. I have to, I don't have another option.